Ethical Health Partnerships

  Patient Education: Advanced Care and End-of-Life / Dying

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Dawn Lipthrott, LCSW
Ethical Health Partnerships
1177 Louisiana Ave. #212
Winter Park, FL 32789


The information contained in our website and in the links below does not constitute medical advice. Its purpose is to help educate and inform you and to help you develop an understanding of your condition or treatment so that you can ask questions and discuss what you learn with your physician. This is NOT intended to take the place of evaluation and discussion with your doctor. Use this simply to help further the discussion with your healthcare professionals

Planning in Advance:
Advance Care Planning

Advance Directives Download Advanced Care forms specific to your state. Health surrogate, living wills, etc.

End-of-Life (Process of Dying, needs of patients, families, etc.) :

Moyers on Dying: On Our Own Terms From a 4- part series on dying and end-of-life issues. Has articles, tools, inventories.

Innovations in End-of-Life Care An on-line journal (last issue posted was 2003), with various articles, tools and news about end-of-life care, spiritual, physician and psychological issues.

Reframing Hope: Meaning-Centered Care for Patients Near the End of Life: An Interview with William Breitbart, MD

Spirituality and the Dying Patient By Paul Rousseau (Journal of Clinical Oncology Series: THE ART OF ONCOLOGY: WHEN THE TUMOR IS NOT THE TARGET ) Journal of Clinical Oncology.

Inter-Religious Perspectives on Hope and Limits in Cancer Treatment AlanB.Astrow, Ingrid Mattson,Rabbi James Ponet,and Michelle White Journal of Clinical Oncology

Learning to Cope: How Far Is Too Close? BRIANM. WOLPIN, BRUCEA. CHABNER, THOMASJ. LYNCH, JR., RICHARDT. PENSON From The Oncologist. A discussion of what PHYSICIANS experience in death, dying and end-of-life care of patients.

Elements and Models of End-of-Life Palliative care defines a model of the relief of suffering and the improvement of quality of life across the spectrum of illness. (You will need the Adobe Acrobat Reader to access this document.) From the Robert Wood Johnson Foundation. Designed to guide physicians and healthcare professionals, useful for families and others.

Whole Patient Assessment Patient assessment in end-of-life care should include the following: disease history, physical symptoms, psychological symptoms, decision-making capacity, information sharing, social circumstances, spiritual needs, practical needs, and anticipatory planning for death. (PDF file.) From Robert Wood Johnson Foundation and listed on the AMA site. Designed to guide physicians and healthcare professionals, useful for families and others.

Pain Management and End-of-Life Care:

Relieving Pain at End-of-Life From Innovations in End-of-Life Care. Resources on pain assessment, treatment, patient and family education and more.

The Last Chance for Comfort: An Update on Pain Management at End of Life Perry Fine, MD

End-of-life Issues and Care: Issues to Consider When Exploring End-of-Life Decisions

© Dawn Lipthrott, Ethical Health Partnerships, 2005
May be copied and distributed as long as this identifying information is retained on copies.)